Click here to donate to The Friends of Sammy-Joe Foundation   Click here to visit Sammy-Joe’s Fundraising Shop at Cafepress. Sammy-Joe’s mother Maria writes about her experiences in her online journal. Click here to read the journal. Donate Now Fundraising Shop Resources & Links Medical Research & Information Genetics Home Reference, Your Guide To Understanding Genetic Conditions - Trichothiodystrophy Children's Medical Research Institute The Association of Genetic Support of Australasia    National Institutes of Health Clinical Centre (Maryland, Bethesda USA) (contact: Deborah Schmidt, Doctor Kraemer’s Clinical Nurse) Medical News Today (archives) MediLexicon Organisations XP Family Support Group The Xeroderma Pigmentosum (XP) Society Genetic Health Services Victoria The Genetic Support Network of Victoria Association for Children with a Disability Very Special Kids GeneTests Share & Care Cockayne Syndrome Network (another DNA repair related disorder) Groups Our Online Support Group (Yahoo) Carers In Oz (Blog) Sunshine On Eagles Wings (Yahoo) The Prayer Bears (Yahoo) Quilts 4 Kids Government Federal Member of Parliament - Maria Vamvakinou Sponsors The Melbourne Wholesale Fruit, Vegetable & Flower Markets Sammy-Joe Children of Promise - Sammy-Joe Other Children & Families Collin Presley Lily Grace Hasson In Loving Memory of Makenna Marie Matthew Mayhorn A family with 3 children who all suffer from TTD The Paulsons: Carrying A Light Burden Email Links Dr James Cleaver (who has done extensive research on the disorder) Louisa Di Pietro -Thalassaemia Society of Victoria info@geneticalliance.org info@skinregistry.org Music To hear the songs below, you will need to download them to your computer.  Please right click on a link, select "save target as" and choose a location on your computer to save that song to. A song that was written about Sammy-Joe Sammy-Joe sings “I Like The Flowers” (recorded at school, December 2004) © The Friends of Sammy-Joe Foundation 2011 Web Site by VP-IT Contact Us Email:  contact@friendsofsammyjoe.org Phone: 0407 558 151 Fax: 03 9305 7591 Visit Us On: Maria’s Online Journal